A Patient & Caregiver Community Dedicated to Resources
Inspiring change and creating a community for rare disease care.
Providing easier and more affordable access to resources for rare disease care. Connecting those affected by rare diseases to the latest programs, products, and digital innovations through partnerships with wellness and healthcare companies that believe in our like-minded community.
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Areas of Focus:
Resources for Patients
There's nothing more important than being your own health advocate. The integrative health and wellness market is expected to grow to seven trillion U.S. dollars by 2025. Creating impactful partnerships between the rare disease community and health, wellness, and medical device companies in order to make accessing products and services easier.
Sleep, Stress & Recovery
The journey of being a rare disease patient or caregiver can bring about sleepless nights and challenges with sleep routines. Certified in Sleep, Stress Management & Recovery with a focus on educating the community with the most innovative sleep techniques and tips.
Rare Disease Awareness
On a mission to create awareness within the patient and integrative wellness communities by providing information about resources in the at-home health innovation category as well as helping patients connect to the latest platforms and online communities aiding in mental health, financial assistance, transportation, and nutritional needs for daily care.
Creating a unique platform that gives back to patients & caregivers affected by rare diseases.
Partner as a patient or business for access to health and wellness resources for daily care.
Work with our team to create your unique wellness offer to the rare disease community.
Join the rare disease patient resource community via our newsletter to stay connected and be featured.
How to Connect as a Patient, Practice or Business
Contact us to create a unique partnership with your wellness product or service so the Rare Disease Community has easier and more affordable access to the resources they need. Join us a patient to find the resources you've been looking for.
Building a Community and Sharing Stories.
I'm so thrilled to share my personal rare disease story in the latest blog. Looking forward to meeting you and hearing how rare disease has affected you and your family.
Share your feedback about how we can help your patient journey with more resources you don't currently have access to.
We would love for you to share your feedback about what resources you need in order to make your rare disease journey easier. Is it a service not offered through your care plan? A product you've been wanting to try for self-care? Send us an email.
Knowledge is Power!
Together we can make the difference
Find out more about Rare Disease
According to Globalgenes.org, 1 in 10 people are affected by rare disease, 1 in 2 rare diseases don't have a foundation or research group, 1 in 2 patients are diagnosed with rare disease, 400 million people suffer from rare disease globally and 8 in 10 rare diseases are genetic. Check out The National Organization of Rare Disease for more information about understanding and living rare.
About The WHO
The World Health Organization has a mission to achieve better health for all through global efforts with people and partnerships. Check out The Who for more information.
Genetic Testing & Counseling
The CDC offers resources for genetic testing as well as genetic counseling to test how genetic conditions may affect you and your family.
Global Genes
Allies in Rare Disease
A Week In RARE, September 18-21! Take part in two important events: the RARE Health Equity Forum and the RARE Advocacy Summit to advance your advocacy to the next level and connect with others within the rare disease community.
Hello!
I'm Sarah, Founder & Creator of Serenely Guided. With over 15 years of experience in Sales, Marketing, Brand Partnerships, Events and Media, I'm creating a unique global wellness community for those affected by rare diseases. After being diagnosed with a rare blood vessel disorder in 2002, I'm passionate about revolutionizing how the rare disease community can access more resources easily. Whether it's health and wellness products to help with self-care and sleep, or financial and mental health programs and end-of-life care, connecting the community to organizations and companies for easier access to products and services is my mission.
I'm looking forward to meeting you and hearing your stories, so that together, we can create and inspire change.
COMING SOON
The Serenely Guided Newsletter & Community
The latest news in health, wellness, digital innovations, emerging brands, as well as products and services in health, sleep, finance, and counseling for patients and those affected by rare diseases.
Serenely Guided & Serenely Guided Media
sarah@serenelyguided.com
Copyright Serenely Guided 2023